Thank you all for the kind words and thoughts you are sending our way. We appreciate them so much, and know that there are so many people out there praying for our family right now.
We’re kind of in a holding pattern right now as we sort things out and wait for records, etc. We definitely declined the one week notice surgery option. Now we’re trying to get all the information needed for more opinions. It’s kind of hard to coordinate between here, there, and everywhere, but it gets done as it can be. Hopefully there will be some further movement late next week.
It’s so surreal when things like this happen. In our case, you would take one look at Erin and think we were making things up. She is just so full of life and energy (and her favorite thing lately is screaming – in public). She is such an on the go baby…constantly moving, learning, and getting in to things. She’s definitely the strongest of all our children I think. It’s funny how God makes each child different and if anyone can fight this, it is her.
Please continue praying for healing of Erin, as well as continued guidance for David and I. When we start thinking about traveling to another place there are so many things that go into play – to fly or drive, to take carseats or strollers, where we’d stay, transportation there, etc. It can get overwhelming if we let it, but we try to only think about it if we have to. Really it’s only a forethought right now as we just don’t know what/when the next step will be. There’s not really a clear feeling that we’re supposed to go one way or the other, so it’s kind of intimidating and you always pray that the decisions you are making to move forward are the right ones. This is just one of those situations that in the midst of it, there is so much we don’t understand, but I know that there is a purpose for all of this, and we just trust that God knows what He is doing!